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Author Topic: Sorry I haven't been around much  (Read 275 times)

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Offline Betty

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Sorry I haven't been around much
« on: February 01, 2018, 12:13:59 AM »
Sorry I haven't been posting much, & it seems like I've disappeared a lot.

I've been here every day & on the servers taking care of things, updating our software, security, & looking around as usual. But I haven't had the time, energy, & health to do much else here lately.

As most of you know after stabilizing my COPD for over a couple years, it got much worse over the summer. It never improved again after that. Suddenly before Christmas it got even dramatically & terribly worse. Just getting up to the bathroom to go poo was a dreadful, traumatic experience of gasping for air almost suffocating to death. Every few steps I had to stop, gasping to catch my breath. It would take a miserable & desperate couple hours just to go poo & make it back.

I have no health insurance. So I have no legal prescriptions to get meds, treatments, or oxygen. A single trip to the doctor could cost me months to years of my rent money. I'm also home-bound. Without meds or portable oxygen I can't step out of my apartment for more than a few minutes without desperately gasping for air anyway -- and doctors don't make house calls anymore.

With well filtered air in a climate-controlled apartment, I'm just barely able to get by. Outside of my place my breathing gets substantially worse. My food & supplies have to be delivered to me. I can no longer get down the stairs. I'm stuck up here. I had to give someone my keys, to bring my food & supplies up to me once a month.

I was forced to borrow a ton of money & buy a small oxygen machine. It helps, in that I won't die of suffocation or a heart attack just trying to go poo, but other than that, it doesn't make my life much easier... I'm just not in danger of imminent death anymore with the new machine.

Even with the huge loan, I could only afford a smaller undersized oxygen machine... and it's AC powered, so not portable or mobile. Got long hoses for it though. It's just not powerful enough or makes enough O2 for my condition.

It takes me 40-60 minutes of desperately gasping for air to go poo instead of 2 hours. And at least with the O2, I probably won't die, pass out, or shyt my panties trying to go. I can bend over to pick something up twice before getting way too out of breath instead of just once.

The huge loan to pay for an oxygen machine, & supplies to survive was actually an advance on a payment for a big job I got that I can do right at home. The job is going well & is almost completed now. But the money I made on the job, I borrowed over a month ago, & it's already spent. The job has been keeping me very busy (on the computer).

This is a 1 time job, but may open the door for offers for more work in the future.

So I've been very busy, & in terrible, miserable health.

Hopefully with your prayers, help, & donations, it will all just be temporary & there's a light at the end of this dark terrible tunnel.

In the meantime, rest assured. I'm still here taking care of our sites, servers, & security. Betty's is still functioning normally. I'm just too busy, ill, & tired to be as sociable as usual or post lots of cool stuff.

My highest priority at here will be the safety, security, functionality, & reliability of Betty's. The social graces & frills will have to wait until I have more time & feel a little better.


Online andyg0404

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Re: Sorry I haven't been around much
« Reply #1 on: February 01, 2018, 06:53:03 PM »
Betty, it sounds like you are eligible for Medicaid, have you ever applied? It's for people with low incomes who aren't eligible for Medicare.

Andy G.

Offline Bertha

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Re: Sorry I haven't been around much
« Reply #2 on: February 03, 2018, 12:58:43 PM »
I'm sorry if I offend anyone's politics, but I cannot understand America's medical system and its resistance to Universal Healthcare. The NHS, with all its faults, would have treated your COPD and provided you with any equipment/oxygen required. I hope you are feeling a wee bit better Betty.

Offline Betty

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Re: Sorry I haven't been around much
« Reply #3 on: Yesterday at 06:06:02 AM »
Quote
Betty, it sounds like you are eligible for Medicaid, have you ever applied? It's for people with low incomes who aren't eligible for Medicare.

LOL. I qualified for the minimum retirement age at the end of June 2017. If all goes well, I might finally get my first retirement check at the end of this March.

Because I worked in both Canada & the USA, & legally paid taxes on the income earned in both, I can qualify for some benefits in Canada if I become a Canadian citizen & actually live there. But I can only get benefits from the country I live in, not both, even though I paid taxes on my earnings from both countries.

So what benefits I would get from either the USA or Canada by itself really isn't much, even though combined, it would have been a survivable retirement. Almost half my life's income was earned in Canada, & taxed in Canada. When I was younger, I worked a lot in Canada all the time. But I'm not a Canadian citizen, & never had a legal Canadian address.

As far as health aid, we're still working on that. Believe me, it would have been really nice. Spending almost $1,000 that I didn't have for an O2 machine & other treatments just to survive a few more months wasn't fun. Going on almost 2 years spending over $200/mo. importing inhalers for COPD. It probably would have cost even more to buy them legally with a prescription locally... plus well over $1,000 per visit just to see a doctor to get the prescriptions.

I was reading an article last week, where in India to treat a certain type of hepatitis, one has to take a pill that cost them $3-$4 every day for 6 weeks. They charge over $1,000 each for the exact same pill made by the same company here in the USA!

Our heath care system has been broken for decades, & most Americans are either too uninformed or naive to even know it. Most of us don't even know that the life-saving $400-$600 epipens used to treat serious allergic reactions in the USA only cost $10-$24 overseas.


Online samantha1

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Re: Sorry I haven't been around much
« Reply #4 on: Yesterday at 06:18:02 PM »
Hi Betty,do they pay well for retirement pensions in the states.

Offline Betty

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Re: Sorry I haven't been around much
« Reply #5 on: Yesterday at 09:34:51 PM »
It depends on how much you made in your life & how much of you got deducted out of your weekly paychecks towards those benefits. So basically, we're just getting back what we paid in benefits during our life. Payments are spread our over your life expectancy. So at the minimum retirement age of 62, they pay you back what you put it, in monthly checks, under the estimate that a 62 y/o male on average, only has 10-13 years left to live. Some live a bit longer or a bit less, but it all averages out to around a life expectancy of 72-75 years old.

But for my jobs during my life, almost half my taxes & benefits were paid to the Canadian government & system when I would work there, & a little more than half was paid into the USA system when I worked here. But I can't get any Canadian benefits that I paid into, unless I become a Canadian citizen, & live there. And if I do, I can't collect any USA benefits.

So no matter what I do or where I live now, I'll can only get about a half a lifetime of benefits from either country, but not from both. But I did have to pay USA income tax on everything I earned in Canada & taxes on everything I earned in the USA.

Right now they're writing new laws to restrict & reduce retirement & disability benefits. Every paycheck for all of our lives has money deducted from it for retirement & disability benefits. This was done under the guarantee that we would get it all back if we became disabled or reached retirement age. But now the government wants to pass laws to keep more of it instead... money that we paid in benefits deductions all our lives, that was promised to be paid back to us later!

Online samantha1

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Re: Sorry I haven't been around much
« Reply #6 on: Today at 01:59:09 AM »
Hi Betty,is that because of this  president wanting to cut down on everything,this cannot be right that they can do this,also how fair that you worked in Canada and USA ,but cannot be paid from both places.


 

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