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Author Topic: Sissy stuff to keep warm with during the "VORTEX"?  (Read 21215 times)

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Offline marybethsanford

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Re: Sissy stuff to keep warm with during the "VORTEX"?
« Reply #320 on: January 13, 2018, 07:48:55 AM »
Just no way around the ugly parts.  I've got a twenty foot hose that gets me to most places and a M6 bottle with a 7 foot hose that gives pulsed air for the short trip.  VA covers the concentrator and bottles plus hoses.  Medicare has the same plan.  Are you Medicare?  Or some sort of medical?  Our place has a drop box with a key that goes in the mail box.  Works pretty well.  Damn.  Wish you well.

Mary Beth

Can you get PDF files someway?  I have a ton of stuff from the rehab I could send you.

Offline Betty

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Re: Sissy stuff to keep warm with during the "VORTEX"?
« Reply #321 on: January 13, 2018, 05:48:58 PM »
25 foot hose, attachments/couplers, along with the the O2 storage bags/pillows arrived at my sister's house. She's hoping she can make it into town to drop them off by next weekend.

I probably read most material on COPD, lungs, & related topics over the years. Been researching this stuff since my mom had COPD over 25 years ago, & it eventually killed her. I watched her get worse every month & year looking for answers. I didn't realize that catching the worst flu of my life would kill me twice, & do serious permanent damage to my lungs, causing my the same problems.

So by the time I got it, I already had a head start on learning about it.

I had some health insurance for a while, when it ran out, I cleaned out my bank, sold a lot of my stuff, & went into debt up to my eyeballs (still paying on that) just to get treatments, care, & stay alive for a few more years.

Back in those days, the medical community didn't expect me to survive more than about 2-3 more years... which meant according to them, I'd be dead around 2016 or 2017.

But the money ran out, nothing left to sell, out of work, & couldn't borrow any more. So I had to self-treat myself on a barebones budget using whatever I could scrounge up or put together. A lot of personal research went into what people in other countries, & poor people in poor countries are doing to deal with COPD.

It's remarkable the enormous amount of stuff that is addressed by doctors & instructed to COPD patients in other countries, that doesn't even get mentioned to American patients, or discussed in American hospitals.

I literally read thousands of pages of medical/scientific journals, research papers, medical trials, & theories. I even read up an a lot of the related chemistry, & medical chemistry. I started maintaining daily logs & graphs of my condition. I was carefully examining data about days I would breathe a little better & days it was worse to find what caused the difference.

It got even more complicated as I had to study atmospheric conditions as a contributing factor such as atmospheric air pressure that day or hour, ozone levels, indoor/outdoor pollution, humidity, & temperature.

There is no cure for COPD. It's a progressive disease too. Once you get it, it continues to get worse. This is because as we age, our lungs do wear, tear, & get worse, so slowly loose more of their capacity to absorb O2 from the air. Environmental factors also cause the lungs to permanently lose more of the capacity to function, like pollution, smoking, etc.

In a normal healthy person, as we age & our lungs wear, we can still loose some lung capacity & live a normal life with no COPD symptoms. But if you have COPD so your lung capacity is already impaired, this normal slow loss of lung capacity over time or as we age can increase our misery, or become life threatening. Not only that, many of the treatments & meds used to make our breathing temporarily better or our life a little better for the short term, may actually decrease lung capacity faster over the long term, over the course of several years. They may even cause cancer after heavy, long-term extended use.

One of my brother's got COPD around the same time I did... due to smoking! He was doing much better with treatments than I was without when my insurance, money, & loans ran out. But just a couple years later I was doing better than he was with no professional medical help or meds (thanks to my research, & budget "treatments"). A couple years later he was in & out of the hospital for cancer treatments & every 4-6 months having bits of his lungs removed because of cancer.

Meanwhile doing it my way, on a budget that most people would starve to death under, I was able to stabilize my COPD for 3 years, & even slightly improve my condition. Most people spend more on food in a month than I pay in rent. Most people spend more on their lunch in a day that I pay for a week's worth of food.

Before the insurance, & money ran out, with medical care, it was assumed I'd probably die sometime by 2016 or 2017. Without professional medical care, I'm still here in 2018! So the financial disaster caused by me losing jobs, insurance, & money due to my COPD may have actually saved my life & stabilized or improved my COPD.

But all good things come to an end. My condition had gotten significantly worse over the summer, & continues to do so. But with an O2 machine that I personally hand-selected for my needs, a new air filter machine (had one wear out in spring), new home treatments, & going back to my routines & diets that worked in the past, hopefully I'll be stabilizing & improving my condition again.

Already during the past week, I've been feeling a significant improvement. And not by being on O2 all the time either. When the new O2 machine arrived I needed it a lot through the whole day & night for almost a week.

This week, when I wake up, I use the O2 machine for about 5 minutes. When I first wake up & in the mornings is usually when my breathing is the worst. Then when I get up to walk around, I'll use the machine for a couple minutes first. When I get back, I may use the O2 for a few minutes more if I'm gasping for air, but not if I'm just breathing heavy. Yesterday I used the O2 the most in the morning, but hardly used it at all the rest of the day... but I didn't try to do a lot of heavy projects or chores yesterday either.

Unless I catch another killer flu or something, it looks like you're all stuck with me for another year.

A couple days ago I took on the project of changing, re-arranging, & re-wiring my antennas. I don't get cable TV. So anything I don't get from my slow bare-bones DSL connection, I get through antennas. Not just for TV though. I rescued & rebuilt my old VHF, UHF, & Shortwave communications receivers after the fire. But it's not just communications type stuff. I can probably pick up AM radio stations 3 times further away clearer than most people. On a really good night, I even can pick some AM radio stations from Western Europe. All FM stations from Toronto & most of southern Ontario come it crystal clear too.

On a good day I even get FM stations from Ohio & Pennsylvania. All sorts of talk shows, science, paranormal, drama, stories, old time radio, & any kind or rare music (most not available locally). On shortwave, I get stations from all over the world, & ham radio chat. I can even pick up some weather & other data from satellites & aircraft. On my TV, I can pick up 4 Toronto TV stations from an indoor antenna near a window. I get over 40 TV stations from the antenna on a good day, & over 30 on a bad day -- no cable TV. Some of them are religious or shopping channels, but there's still a lot to choose from, for free!

Anywho, during the antenna projects a few days ago I had to constantly stop, & get O2 to catch my breath. But the fact is, it took me 1 evening to get the entire job done. Just a few weeks ago it may have taken me a week of more to get the same thing done. And at no point was I desperately gasping for air feeling like I was suffocating or gonna die either. If my breathing was that bad, I wouldn't even consider the project. Indeed, the project was way long overdue, because I couldn't see myself doing it without it taking forever. They put a new metal roof & metal siding on my building last year. All my antennas are indoors, & it seriously phucked up my reception. I was still picking stuff up but nowhere near what I used to. All my antennas are crammed near my few small windows now, but reception is good again.

Offline Betty

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Re: Sissy stuff to keep warm with during the "VORTEX"?
« Reply #322 on: March 15, 2018, 09:30:28 PM »
Air pressure outside has been extremely low for many days. That's like the low air pressure up on a mountain... like altitude sickness. Not good for COPD. Been breathing terribly again.

Odd weather. 0F (-17C) to 60F (16C) throughout most of January, 40F (5C) to 60F (16C) through most of February. But 20F (-6C) to 34F (1C) with snow most of March.


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